About ALS Tracker
ALS Tracker is a free, independent website for people living with ALS and the people who care for them. It tracks the drugs being developed for ALS, explains what the scientific evidence actually says, and monitors how consistently the companies behind them share updates.
But this project has a personal story behind it.
Why this exists
In early 2025, my partner began experiencing weakness in his shoulders and arms. What initially seemed like something that might have a straightforward explanation gradually became a much more complicated journey.
We found ourselves navigating medical appointments, neurological examinations, tests, second opinions and, eventually, the possibility of ALS.
Like many families facing this situation, we suddenly had to learn an entirely new medical vocabulary and understand a disease we had never expected to encounter so closely.
I started researching everything I could find: potential treatments, clinical trials, experimental therapies, scientific publications and emerging developments around the world.
The more I researched, the more I realised how difficult it was to get a clear picture of what was actually happening.
Information was scattered across pharmaceutical company announcements, clinical trial registries, scientific papers, investor presentations and news websites. Promising headlines often lacked important context. Early-stage findings could sound like breakthroughs, while treatments that had been discussed for years sometimes had little real progress behind them.
For someone trying to make sense of ALS, the difference between hope and evidence matters enormously.
I wanted a better way to follow what was happening.
From personal research to ALS Tracker
I began building ALS Tracker as a way to organise the information I was already collecting for myself.
I wanted to answer some straightforward questions:
- What treatments are being developed for ALS?
- How far along is each one?
- What have clinical trials actually demonstrated, rather than what headlines suggest?
- Which companies are making genuine progress?
- What has happened to treatments that once generated considerable excitement?
- Which clinical trials are recruiting, and where?
Over time, this personal research project grew into a public resource.
ALS Tracker is my attempt to make the ALS research landscape easier to understand, follow and independently verify.
It is not about promising breakthroughs or offering false reassurance. It is about making the available information more accessible, putting developments into context and being honest about what we know, what we don't know and what remains uncertain.
I hope it helps other people facing the same overwhelming information landscape that my family and I encountered.
Who made it
What this site is not
- It is not medical advice. It cannot replace your neurologist or ALS clinic. Treatment and clinical trial decisions should always be discussed with qualified medical professionals.
- It is not affiliated with pharmaceutical companies. No drug company funds, controls or approves the content.
- It is not a promise of a cure. Experimental treatments are experimental. Scientific progress is real, but so are failed trials, delays and uncertainty.
- It is not exhaustive. The main tracker focuses on drugs in Phase 2 or later, alongside a selection of notable treatments in earlier human trials.
How the data is collected
Each week, every drug is checked against company announcements, clinical trial registries, regulatory decisions, published research and ALS news.
AI research tools help gather and summarise information, but every published value must have a supporting source. The goal is to make the information traceable, so you can check the original evidence yourself.
Read the full method on How to read this site. Each week's changes are on What changed.
Privacy
We use Google Analytics to count visits and see which pages are useful, so we know what to improve. Advertising features are turned off, and we never sell or share data. If you send a correction, we only use your email to reply. If you subscribe, we use your name and email only to send the weekly update, and your answer to "I am…" only to understand who reads it. Unsubscribe any time with the link in each email.
Get in touch
If you spot something incorrect, outdated or missing, or know about a treatment we should be tracking, please get in touch.
ALS research is moving across many countries, institutions and companies. The more accurately we can follow that progress, the better informed we can all be.
ALS Tracker is independent, free and built with a personal reason to keep looking.
Peter Vukovic